aHUS Patients perspective (EN) 1. General questions Thank you for participating in the survey on aHUS (atypical hemolytic uremic syndrome). Many insights on aHUS have been gained in the past decade and new treatments options are currently under development. We would like to know your opinion on treatments options from a patient's perspective. Question Title * 1. How were you contacted to participate in this survey? AIRG Suisse AIRG France AIRG Belgique HUS alliance My doctor Other Question Title * 2. Other ways of being contacted to participate in the survey: Question Title * 3. You are a parent of a child with aHUS Yes No Question Title * 4. What year were you born (aHUS patient)? Question Title * 5. Gender (aHUS patient)? Female Male Other Question Title * 6. Where do you live? (country of residence) Suisse France Belgique Other Question Title * 7. If not selected above, where do you live? (country of residence) Question Title * 8. I have following type of health insurance Private Government Private and government No health insurance Other Question Title * 9. What age did the first episode of aHUS occur? (years) Question Title * 10. Did you ever require dialysis during your disease (aHUS patient)? Yes No Question Title * 11. Are you still on dialysis (aHUS patient)? Yes No Question Title * 12. For how long were you on dialysis (aHUS patient)? Question Title * 13. How many kidney transplantats have you had (aHUS patient)? None 1 2 3 or more Question Title * 14. Do you know your current creatinine value? (umol/l) * leave blank if unknown Question Title * 15. Do you know your current urinary protein value? (g/day) * leave blank if unknown Question Title * 16. Is your blood pressure frequently >140/90mmHg or are you on blood pressure lowering treatment? Yes No Question Title * 17. Anything you would like to add? Suiv.
